Younger onset dementia and the NDIS

Supporting people with younger onset dementia in the National Disability Insurance Scheme (NDIS)

The National Disability Insurance Scheme (NDIS) is the new way supports will be provided to eligible Australians with a disability or disease such as younger onset dementia.

The purpose of the NDIS is to provide people with greater choice, individualised support and the flexibility to manage these supports.

The NDIS began in a number of trial sites around Australia from July 2013 where younger onset dementia key workers in those areas worked with their clients to navigate the scheme.

As of 1 July 2016, the NDIS was formally launched and is being introduced in stages across Australia. The NDIS will roll out incrementally over three years to ensure it is successful and sustainable.

Your existing supports will remain in place until the NDIS is available in your area.

As the NDIS rolls out across Australia, Younger Onset Dementia Key Worker Program services will be available as support items on individual NDIS plans in areas where the NDIS is active.

How your younger onset dementia key worker can help you prepare for the NDIS.

Any new system, such as the NDIS, can seem difficult to navigate at first.

Younger onset dementia key workers are ideally placed to support people with younger onset dementia in the NDIS. The program has been interacting with the NDIS since it was first trialled in 2013.

The Younger Onset Dementia Key Worker Program is also the only program registered to deliver NDIS funded services that is solely dedicated to supporting people with a diagnosis of younger onset dementia.

Their dementia-specific focus and experience supporting people with younger onset dementia during the NDIS trial phase means your younger onset dementia key worker are well prepared to help guide you and your family through all aspects of the NDIS.

Your younger onset dementia key worker can support you, your family and carer in a number of ways as you prepare to develop your first NDIS individual funded plan. Your younger onset dementia key worker can:

  • Provide you information about the NDIS and how it will affect you;
  • Offer guidance and support to obtain and complete your NDIS Access Request Form;
  • Help and support you and your family or carer as you prepare for your first meeting with an NDIS planner by working with you to identify your existing needs and supports;
  • Offer guidance and support to help you identify potential needs and supports for the next 12 months in order to address these with your NDIS Planner;
  • Attend your NDIS planning meeting with you, at your request, to support and advocate for you to help ensure a comprehensive and appropriate plan is developed for you; and
  • Liaise with your NDIS Planner following your planning meeting.

Contacting a younger onset dementia key worker about the NDIS

If you are an existing Younger Onset Dementia Key Worker Program participant contact your younger onset dementia key worker to learn more. If you are not currently participating in the program, the best way to access the Younger Onset Dementia Key Worker Program is to call the National Dementia Helpline on 1800 100 500.

Learn more about what is happening in your state or territory:

Australian Capital Territory

New South Wales

Northern Territory

Queensland

South Australia

Tasmania

Victoria

Western Australia