Summit highlights needs of people with younger onset dementia

People living with younger onset dementia will today release a report “A New Horizon?” documenting the unique challenges faced by the 24,000 people living with the condition and outlining how the National Disability Insurance Scheme (NDIS), and other funding systems including health and income security, should respond.

The report is a result of a conference held yesterday, led by people living with younger onset dementia and their carers to prioritise the action required to meet their needs.

It will be launched by Alzheimer’s Australia National President and Australian of the Year 2013, Ita Buttrose, at Alzheimer’s Australia’s National Summit, Younger Onset Dementia: A New Horizon, at the Melbourne Convention Centre today.

Ms Buttrose said people living with dementia under the age of 65 have unique difficulties.

“They don’t typically qualify for aged care and find it difficult to fit into disability services because they have to cope with a completely different set of professional and family-related issues,” she said.

“They also experience difficulties accessing respite care, getting a diagnosis and dealing with stigma and isolation within the broader community.”

More than 320 service providers, stakeholders and policy makers across the aged care, disability and mental health sectors will attend the Summit to discuss and address the challenges that people living with younger onset dementia have to overcome.

“With historic changes in health policy taking place with the roll out of the National Disability Insurance Scheme (NDIS), and the Federal Government’s proposed aged care reforms, this is the time to make sure that people with younger onset dementia receive the support they need,” Glenn Rees, CEO of Alzheimer’s Australia said.

“The Report, “A New Horizon?” recommends a collaborative approach is needed to create solutions for improved access and choice.

“But for this to happen, consumers will need to be better informed to make choices about the services to meet their needs and service providers will need to be prepared to respond flexibly.”

To download the report "A New Horizon?" click here.

To download Ita Buttrose's opening speech, click here.

To download the media release, click here.

To download the summit flyer, click here.

To download Quality Dementia Care 4, click here.


Christian Bakker
Program Manager, Florence Centre for Specialized Care in Young Onset Dementia and Healthcare psychologist, Department of Primary Care and Community Care, Centre for Family Medicine, Geriatric Care and Public Health, Radboud University Nijmegen.

Dr Adrienne Withall BSc (Hons), PhD
Postdoctoral Research Fellow, Dementia Collaborative
Research Centre

Mandy Lovell BA, Grad.Dip. Psychology, MA (Criminology)
The Lovell Foundation

Danielle McIntosh BAppSc(OT), MHlthServMgt, Grad Cert (Dementia Studies)
Senior Consultant, HammondCare

Robyn Faine
General Manager, Services, Alzheimer’s Australia NSW

Professor Dennis Velakoulis MBBS, FRANZCP, MMed, DMedSci, DipCrim
Consultant neuropsychiatrist and director of the Neuropsychiatry Unit, Royal Melbourne Hospital

Associate Professor David Darby MBBS, PhD, FRACP
Neurologist, Eastern Cognitive Disorders Clinic

Rosemary Mc Grann BA (Hons) /BSocSc SPAS
Team Leader, Central Bayside Community Health Services; and

Lyn Entwistle BAppSc (OT)
Client Assessment and Services Occupational Therapist, Aged Services, Central Bayside Community Health Service  

Angie Robinson
Executive Manager Service Development, UnitingCare Ageing Hunter, Central Coast & New England Region

Alzheimer’s Australia Vic would like to acknowledge the generous support of Lord Mayors Charitable Foundation and that of Nich and Rosemary Rogers.


Response to the National Disability Insurance Scheme Bill 2012

Response to the COAG Consultation Regulation Impact Statement