Other resources

Websites and links

Alzheimer's Australia online library

The Department of Health and Ageing 
2 Young 4 Dementia - a learning resource to support improved dementia awareness and care for younger people with dementia. This resource was supported by the Australian Government under the National Dementia Initative. For more information and a free copy of this resouces please email the Department of Health and Ageing. 

Alzheimer's Disease International 
Younger People with Dementia (Early Onset)

Alzheimer's Society (UK) 
Younger people with dementia 
Services for younger people with dementia

Alzheimer's Association (US) 
Younger Onset Issues 
I'm too young to have dementia 

DASN International - Dementia Advocacy & Support Network 

Clive Project - Working for younger people with dementia in Oxfordshire

HACC Service Models for People with Younger Onset Dementia & People with Dementia and Behaviours of Concern: Issues for Aboriginal and Torres Strait Islander People and People from Culturally and Linguistically Diverse Backgrounds - Final Report, February 2008

Appropriate HACC Service Models for People with Younger Onset Dementia & People with Dementia and Behaviours of Concern - Final Report, February 2007

Books

Alzheimer's Association [U.S.] Early onset dementia : A national challenge, a future crisis Chicago, IL: Alzheimer's Association, 2006.

Alzheimer's Association Australia The young mind : issues in relation to young people and dementia Sydney, NSW: Alzheimer's Association Australia, 1994.
Baldwin, Robert and Michelle Murray (eds) Younger people with dementia : a multidisciplinary approach London, UK: Martin Dunitz, 2003.

Boden, Christine, Who will I be when I die? HarperCollins, 1998.

Bryden, Christine, Dancing with dementia Jessica Kingsley, 2005.

Cox, Sylvia; Keady, John. Younger people with dementia: planning, practice and development Jessica Kingsley, 1999.

Cox, Sylvia; McLennan, Jane M A guide to early onset Dementia, Stirling, Scotland: Dementia Services Development Centre, 1994.

DeBaggio, Thomas Losing my mind : An intimate look at life with Alzheimer's New York, NY: Free Press, 2002.

Imperial College of Science and Medicine Young onset dementia : epidemiology, clinical symptoms, family burden, support and outcome North Thames: NHS Executive, 1998.

Radin, Lisa & Gary Radin, What If it's Not Alzheimer's? A Caregivers Guide to Dementia Prometheus Books, 2003.

Valenta, Tom. Remember Me, Mrs V? Hill of Content Publishing Co Pty Ltd, 2007.

The carer experience: Information and ideas for carers of people with dementia, Australian Government Publishing Service, ACT.

Audio visual resources

An unexpected journey : Living with Alzheimer's disease [Video] : a presentation by Philip Alderton diagnosed with Alzheimer's disease at the age of 61 / Alzheimer's Association (S.A.) Inc. -- Glenside, SA: Alzheimer's Association South Australia, 1998.

Early onset memory loss : a conversation with Letty Tennis. [Video] Joseph & Kathleen Bryan Alzheimer's Disease Research Centre

My challenge with Alzheimer's disease [Video] -- South Melbourne, Vic. Educational Media Australia, 1996. 

Journal articles

Challenges and charms : supporting younger people with dementia in Oxfordshire
Signpost: to older people and mental health matters, Vol. 8(1) June 2003, p.5

Course and causes of suspected dementia in young adults: a longitudinal study / Panegyres, Peter K.; Frenchman, Kate. -- Thousand Oaks, CA: Sage.
American journal of Alzheimer's disease & other dementias, Vol. 22(1) Feb/Mar 2007, p 48

Developing better services for young onset dementia
Journal of Dementia Care, Vol. 12(1). Jan/Feb 2004, p.16

Dream catcher: a native American meditation practice / Francis, Ryan; DeVoid, Nicole; Richeson, Nancy E.
Activities Directors’ Quarterly, Vol. 8(3) Summer 2007 p. 42-46

Early-onset Alzheimer's disease: When is genetic testing appropriate?
Alzheimer disease and associated disorders, Vol. 18(2) Apr/Jun 2004 p.65-67

Early-Onset Alzheimer Disease in an Italian Family With Presenilin-1 Double Mutation E318G and G394V / Batelli, Sara [et al]
Alzheimer Disease & Associated Disorders. 22(2): Apr/Jun 2008, p.184-187.

Evaluation of an early onset dementia service
Journal of Dementia Care , Vol. 12(1) Jan/Feb 2004 p. 35

Integrated care pathways for young onset dementia
Journal of Dementia Care, Vol. 12(2) Mar/Apr 2004, p.29

Living a quality life with dementia / Dyck, Phyllis
Alzheimer’s Care Today, Vol.8(4) Oct-Dec 2007 p. 301-303

Providing person-centred care for younger people with dementia
Journal of Dementia Care, Vol. 12(1) Jan/Feb 2004, p.18

What users and carers think of a service for younger people
Journal of Dementia Care, Vol. 12(1) Jan/Feb 2004, p.38

Younger people with dementia : the challenge
Signpost : to older people and mental health matters, Vol. 8(1) Jun 2003, p.12 

Alzheimer's Australia publications

Younger Onset Dementia - A Practical Guide 

In our own words 

Understanding younger onset dementia 

Exploring the needs of younger people with dementia in Australia 

Younger onset dementia - Help Sheets

The Long and Lonely Road 
Insights into living with younger onset dementia.